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Deep Fried Twinkie: An Open Letter to The Crohn’s and Colitis Foundation


Over the last few weeks, I have been increasingly frustrated by things I’ve been hearing. The hydrogenated oil and high fructose corn syrup icing on the refined corn flour and high fructose corn syrup cake was when I was informed that deep fried Twinkies were served at the Crohn’s and Colitis Foundation of Canada (CCFC) fundraiser. It is hard for me to stay rosy and  just let that one go. I do pretty well, generally, at chalking up such silly actions to people simply doing the best they can with what they know. This, however, is the CCFC for goodness sakes. They should know better. They have oodles of donations worth of cashola in order to know better. Twinkies, hot dogs and soda pop at a Crohn’s walk is pretty much the equivalent of  passing out ciggies at a cancer walk as far as contributing factors go for a worsened disease prognosis.

I am astounded by the effort and money people will throw at such organizations, who claim to be doing “research” to find “cures”.   I am among thousands who are living evidence that a cure already exists and it’s pretty similar for many other health challenges and diseases too. Healing with whole foods, sadly, doesn’t create a revenue generating industry (unless we start paying our farmers what they deserve for the ‘medicine’ they grow for us).

Just as I wrote a letter to my gastroenterologist, I also wrote a letter to the Crohn’s and Colitis Foundation of Canada inviting them to join our retreat this weekend. Of course, I haven’t heard back from either. Now, ignorance may be bliss, but when that ignorance comes at the expense of hundreds of thousands of people’s lives every year, and the general public’s money, that is astoundingly poor practice.

I firmly believe that knowledge is power and that if we could just get a few key people to learn what Josh, myself and other practitioners have to teach- experience it for themselves, well, it might be the last pill they need to swallow in order to understand the unparalleled capacity the body has to heal and cure disease. Under the right circumstances, nature has the ability to heal and this has very little to do with extravagantly costly research, drugs and studies. I am not talking about treatment and management- that has it’s necessary time and place when needed.  This is about going a step further and actually healing the body! This component, sadly, is getting ignored. I don’t have the $57.5 billion that pharmaceuticals spend on marketing to physicians (US stat from “The Cost of Pushing Pills. Public Library Science Med 5(1) (2008)) each year.

I welcome your comments (for better or worse, as long as you keep it profesh) below and would be happy to pass them along to the CCFC. I don’t give up lightly.

Dear Crohn’s and Colitis Foundation of Canada,

I have contacted various people in various departments asking if I might be able to volunteer my services by offering education around healing approaches for inflammatory bowel disease (IBD). I recently contacted you, in regards to my upcoming digestive healing retreat. The response I received read as follows:

“Given how different everyone’s experience with Crohn’s and colitis is, and the fact that we are not medical professionals, we don’t advocate one therapy over another to our membership”.

I am aware that in April, the organization hosted a symposium for Crohn’s and Colitis and most recently held your annual fundraiser in partnership with M & M Meat Shops where people could purchase a hamburger or hot dog, chips and a pop to support research to find a cure for Crohn’s and Colitis.

Every year, when I hear advertisements for this event, I am continually shocked by this partnership and the inherent lack of education provided to patients who suffer with these diseases in regards to how eating such foods could potentially proliferate and accelerate the progression of the aforementioned diseases.

From my perspective, as both someone who once had Crohn’s and healed from it 100% naturally and now as a nutritionist and healthy lifestyle educator, this partnership might be viewed as the equivalent of a cigarette company partnering to host a cancer research fundraiser.

I know many people who are actively involved in raising funds and awareness on behalf of the Crohn’s and Colitis Foundation of Canada (CCFC) and am in full support that better treatment and management options need to be made available to people who are currently suffering acutely from these diseases. I also feel incredibly strongly that equal to research in medication and surgery for treatment and management, is the need for expanded research on natural and preventive treatments that include dietary and lifestyle changes to heal the disease.

The fact that at your celebratory fund-raising events, you serve foods such as shrimp cocktail, fluffy white breads and other foods absolutely unsuitable to IBD sufferers, and then offer up deep fried Twinkies, bagels, burgers, nitrate-filled hot dogs and canned pop at a health event is absolutely shameful.  Clearly, the organization is looking in a different direction all together. I feel confident in saying that with this attitude towards the role diet plays in a digestive disease, a true and lasting cure will never be found.

I believe that to publicly state that “There is no known cure and no known cause for the illness” is a falsehood. As well, to proclaim IBD as a “profound lifelong disease,” is simply not true- or doesn’t have to be.

There is a massive missing component in the information being provided to sufferers and I believe that the CCFC could absolutely help support the shift needed in order to make the change and improve the lives of the nearly quarter of a million people in this country who suffer. People need to be educated on the importance of their role in their disease, to take ownership and responsibility and to know that this does not have to be a “lifelong disease”. There are ways to heal. These ways will include eliminating Twinkies, pop and hot dogs, but will also eliminate pills, surgeries and nights spent in emergency rooms hooked up to IVs and requirements for blood transfusions.

Employing health promoting practices into everyday life such as yoga and meditation, whole natural foods, eliminating specific allergens and digestive irritants, and changing some of our thoughts could be all it takes. It is not rocket science and does not require millions of dollars in research, but it can, almost instantly, alleviate suffering for thousands of people.

As I had previously mentioned in my email to you, my colleague and I are hosting a Digestive Healing Retreat on June 25th. I understand that you have raised enough funds for two more years of research. I commend this achievement and I would like to suggest that perhaps a representative from the CCFC might join our retreat this weekend and see what other options are available for helping people to heal from IBD. Consider this part of the research towards finding that cure.

Though I know you do not condone any specific treatment over another, I do know that you offer scholarships. Perhaps in the future, you might consider offering scholarships/funding for members of the CCFC to explore the healing methods of nutritionists and holistic therapies or potentially, sponsoring a Digestive Healing Weekend Retreat to grant some of your members the gift of attending a retreat such as the one we are running this weekend, or others like it.

I am sure that we can agree that things need to change for people who suffer. More and more people are diagnosed every year and so far, the only cure I know is the one that heals and repairs, and so far, this is being achieved through diet and lifestyle far more successfully than any pill or surgical procedure. For many patients, the greatest success comes when both approaches can be utilized together to manage and treat immediate symptoms and heal the disease for a lifetime.

I look forward to hearing from you at your earliest convenience.

Kindest Regards

Meghan Telpner

Question of the day: What are your thoughts on all the walks, rides, runs for cures that offer people junk food for sustenance during the event?


34 responses to “Deep Fried Twinkie: An Open Letter to The Crohn’s and Colitis Foundation”

  1. Vicki Thomas says:

    I’m wondering if you have any thoughts on the Specific Carbohydrate Diet? I have ulcerative colitis and I’m trying to get through a rotten flare… My doctor wants to put me on steroids so I’m trying to avoid these. Your retreat sounds awesome – unfortunately I have a conflict this weekend. I agree re: the food served at the event. Sticky situation indeed.

  2. Samantha Angela @ Bikini Birthday says:

    Great letter!
    I think it is so frustrating when health research groups are in bed with the very companies whose products cause health problems.
    I was disgusted to learn that KFC partnered with Susan G. Komen Breast Cancer Foundation in the US for the Bucket for the Cure campaign that donated money to the foundation for every bucket of KFC sold. Yeah.

  3. Emily says:

    Thank you for having the courage to write this. It is a wonderful letter that expresses everything you might be feeling beautifully, and without (too much) condemnation. I’m sure there are other greener, healthful, sustainable companies they could parnter with for future excursions. The unfortunate truth is that most foundations simply go where the money is, and M&M Meats probably offers a good chunk of dough (but somehow only enough to afford discount-style hot dogs, burgers, and soda?).
    Once we, as alternative health professionals, start making the big bucks we’ll start our own foundations, fund our own city-wide info sessions and awareness walks and change the face of the world.
    Keep on kicking butt.

  4. Monica says:

    I’m really inspired with your blog and career as a whole. You spoke before about how your grandfather influenced you and how he ‘put it all out there’. I’m really inspired that you wrote this message, that you told all of us, and that you take action. I did the CN Tower Climb for Climate and they offered individual yogurts/bottled water at the event. I do understand that it’s necessary to provide water; especially for a climb… but it would be amazing if they did it with less waste (particularly for an event that has an environmental focus). How about an option where you bring your own bottle up the climb (I’d wear a waist pouch to hold it) OR partner with a bottling company (not a great option given our tap water is safe; but I’m trying to appreciate the funding considerations) and have them supply it at the top via recylced cones? And lose the useless yogurts and packaged cookies/candies altogether; bring in super-food suppliers and spoon out an assortment right into our hands. They did do a good job with diverting waste and did use biodegradeable spoons… that was a huge improvement over the year before. I think it takes comments from people like us… they do listen. I’ve committed to write to the organizers and will share my letter with you.

  5. Michelle S. says:

    As a diabetic eating a plant-based diet, I find it a little frustrating when I go out to the annual JDRF walk for the cure and there are all kinds of kids with Type 1 diabetes…. and lots of junk food. Now, I know it is hard to serve quinoa salad to hundreds of people, but I wish there wasn’t so much junk food. At least at a few races I have done lately, they have fruit and bagels as snacks. And as someone who has healed from digestive disease in a similar manner to you, I do think back with anger at the poor advice and all the invasive testing I went through with G.I doctors. I could write a letter like yours too. If I had listened to those doctors I would still be eating gluten and still be sick because the Celiacs tests came back negative. But i know it makes me sick. They don’t understand the link between nutrition and disease, which is CRAZY!

  6. jamie says:

    Good for you Meghan!!
    This is a great letter. That makes me so crazy upset that they would provide such terrible foods at an event for IBD. Deep fried twinkies….It doesnt get any worse than that! :(
    They do not really want a cure, they just want people to keep giving them money to fuel the already crazy pharmaceutical industry.
    Love that you sent this well written and well thought out letter to them!!

  7. Liz says:

    You said it… ignorance is bliss.
    Most people, even those who are suffering, are completely unwilling to change their lifestyles. Any suggestion to do so comes as a threat. Frustration to the max!

  8. Vanessa says:

    Hmm… it’s interesting what they wrote to you, about people experiencing the disease differently and not being able to advocate one treatment over another. But the thing is, by serving twinkies and hotdogs, they ARE advocating one treatment over another — they’re advocating the “eat whatever you want and then take a million pills and possibly have surgery” treatment.

    It’s hard. The only other person I know who has Crohn’s is a young guy who wants nothing more than to fit in with his friends — so when they all go to McDonald’s, he’ll order a greasy cheeseburger and just suffer the pain, knowing full well that it’s bad for him. I spoke to his mother about your story and changing his diet, and she said she tries, but he’s intent on eating whatever he wants and dealing with the repercussions. Sad.

    Crazy to hear about other people’s experiences with KFC-sponsored cancer walks and such… my only experience is the Sporting Life 10K, which raises money for Camp Oochigeas (for kids with cancer)… nothing horrible there, except a LOT of waste with bottled water and disposable Dixie cups; then a lot of grape juice, bagels and bananas. One walk I did that was good was the Light the Night one for Lymphoma and blood-related cancers — that was just a walk and they didn’t provide anything other than T-shirts, which was perfect!

    • Meghan Telpner says:

      People have to be ready and open to take responsibility to make the lifestyle changes. As we both know- once the changes are made and become normal, it is so easy! I think if education were offered on the absolute value of the approach. It’s really hard to fit in with your friends when you’re lying in a hospital bed or have a bag collecting poop strapped to your waist. Those are the options…

  9. Victoria says:

    This is an amazing letter Meghan. I remember being in the oncology unit with my mother when she had been diagnosed with breast cancer, and was appalled that they were serving deep-fried “timbits” in the waiting area. It continues to amaze me how much all of these Foundations and Organizations absolutely ignore and/or dismiss the link that these foods have with making us sick in the first place. Your analogy to cigarettes is bang on. Thank you for writing so eloquently, and speaking for so many of us.

  10. Jody says:

    Great letter Meghan! I very rarely donate to the charities as I can’t support the research that they do – I’d be happy to donate if I thought they were looking into something besides the magic pill that will cure all – which will never exist. That magic pill will likely cause some other ailment far worse then what it was originally taken for.

    As for the partnerships these charities hook up with it’s very sad and really goes to show you that they discount diet completely.

    People don’t want to admit their diet may need to change – it’s so much easier to take a pill. I’m not saying diet is a cure all for everything but really people what do we have to lose by changing our diet to be healthier and full of whole foods! I’ve never read a fruit or vegetable that comes with a listing of side effects.

  11. anne says:

    I am a celiac, and struggling with general digestion-issues. I agree with you: my heart (or is it my tummy?) weeps when I see things like that.

    Re the letter you wrote I think it’s great – if you could use some critical feedback I’d say that for one, I wouldn’t use the word “healing” twice in the two first sentences. I might be biased because healing cannot mean the healing of a wound or after disease in my language, only healing as in let’s try curing cancer by clapping our hands. I’m thinking better be safe than sorry, if the reader is not used to thinking about a holistic approach to Crohns, (s)he might be off to a bad start with the letter. I’m thinking it could be more clear that your approach is about healing as recovery/cure/living with(out) Crohn’s, and about nutrition. Second, I would skip asking for a sponsorship for a digestive healing retreat. I think asking them to send someone to join the retreat is a great idea, but a cynic reading your letter could get to the bottom part and wonder if the whole letter is really just about getting a sponsorship, and discard it. I hope you know I’m just trying to be the devil’s advocate here!

    I really hope something comes of the the letter. Thanks for all your work – I am sick and tired of trying to figure out how to heal from the inside out, and it is a ray of sun to come to your website and have the information served by someone warm, wise and witty :-)

  12. Cherie says:

    Makes me want to scream…and I often do at all the drug/food AD’s on TV! I applaud & admire you so much Meghan for trying to make a difference!! Unfortunately it is just too big of a profitable business (just like cancer) and they have no interest in “finding a cure or doing any real research”! It is up to us, with the help from wonderful people like you, to take responsibility for our own research and help our self and spread the word. Thank you sooo much!

    • Meghan Telpner says:

      Cherie! You just said what I really wanted to say. Disease is the biggest business out there!

  13. Amy says:

    I love participating in charity events… but I generally hate the ‘giveaways’ at them. A t-shirt for a marathon in support of curing a disease? Wear it with pride! That’s a badge of honor! But all the other ‘swag’ (keychains, pamphlets, bandanas and other nonsense) that goes in the goody bag- thanks but no thanks… generally a bunch of junk in my house that I eventually pack up and give away.

    Back to the twinkies —

    Yesterday my school hosted our annual sports day. The population of the students at my school are primarily those individuals of low socio-economic status (aka our kids are poor). Last year, a local service group supplied our lunch providing us, after a hot morning of fun and fit activities, with greasy pizza, bags of chips, pop and pathetic little apples. I protested, saying if we are offered a free lunch, we had better, as teachers, be certain to make it nutritious. I’m not opposed to treats for kids — just not in excess. A different local service group offered to buy us lunch this year. I helped with the menu this time, choosing lveggie and/or lean roasted beef sandwiches on whole grain bread (no condoments necessary), real fruit juice boxes (I backed checked their notion of real – it was), juicy apples and chips (like I said, not opposed to the notion of treats on the whole). I know that we could have done way better nutrionally, but we were working within a budget and the catering restictions of a chosen company. Still, I think the choices were good, for 200 kiddies, on the whole.

    Who was the worst behaved? You decide — many teachers came up to me “the kids are complaining…” and I responded, as a teacher leader “Act as a model and eat. Show manners. Remind them of the purpose of the day (fun and fitness).” When I came around to collect recyclables, most of their classes had only touched their chips and juice. I threw out food. From poor kids. Some teachers, I have to note, were polite — and so were their kiddies… sandwiches were eaten with gusto, apples were nibbled to the core. Modelling works, I say.

    Some TEACHERS even had the gaul to say ‘pop and juice have the same sugar content, y’now…’ I answered back, sweetly, ‘You’re correct. Except that pop has excessive sodium and all sorts of other chemicals, and this real fruit juice has a few nutrients. And, in moderation, kids are fine with a little juice.’

    All in all, I feel awful. I’m leaving the shcool this year and I have failed to educate the adults nutrionally. They see my efforts as getting in the way of something ‘fun’ when they forget that food, and eating together, is about loving each other. That love, as I see it, whether in celebration or simply ‘getting the fuel in,’ should ensure long life and happiness —
    I could go into a diatribe explaining healthful eating, those in financial crisis, insta-foods and all of those evils. But I’d be repeating myself and getting more upset.

    Frustrated-ly yours in Calgary,

  14. Kirsty says:

    Meghan, I think your letter was spot on and like others have said, will most likely be ignored because your way won’t make them any money. If only we could get more people to divert their money from these so called “charities” into organizations like yours that will actually help people.

    Amy – I hear you and applaud what you tried to do at your school – I just finished watching Jamie Olivers Food Revolution and I just don’t know how he finds the strength to tackle such a massive problem. But I guess if he even changes a handful of lives, it was worth it right?

    And as far as sponsors for events that are contrary to the purpose – my favourite is all the Canadian Olympic athletes that talk about eating healthy and exercising to keep in top Olympic shape – and then appear in the commercials for Coke and McDonalds – shame on them for selling their souls to the devil – what kind of role models are they???

  15. Meg says:

    Thank you so much for writing this. I was so angered when I saw this at the event, there was nothing I could eat except for the watermelon and the gluten free, vegan granola bars called Simply Bars. I just don’t understand why they serve all of this junk!?!?
    I was even more appalled when I went to the CCFC Symposium, and all they had to eat were pastries, muffins, breads, cheese and melon and strawberries. There was even a naturopath who talked at the event who told us that gluten, sugar, melons, strawberries, dairy, etc, were bad for those with IBD…why didn’t she tell the CCFC this before hand???
    SO frustrating!

  16. Vaishali says:

    Hi Meghan,

    Your website is so inspiring. When one sees such food served at fundraisers, I wonder if they even know anything about IBD/Crohn’s. Either they know or they don’t care. I also wonder what kind of research they have done over the years about digestive disorder. I am sure we would find some solution if they were to team up with alternative therapist/nutritionist like you and try to genuinely help people suffering.

    Are melons and strawberries not good for people with IBD?

    I would have loved to come to your retreat, unfortunately cannot afford it.

    Great work!

  17. Tara says:

    This reminds me of something I read in my local paper yesterday. The Red Cross is putting on a blood drive here. In exchange for your blood they are giving out fast food chicken wings and fast food pizza. Brilliant, huh? I too wrote a letter to the Red Cross – not as eloquent as yours, but still expressed my concern.

  18. Jennifer R. says:

    awesome letter, Meghan. I’m so thankful that you are fighting this uphill battle… it’s a LONG ways to go, but through education some people will see the light. Thank you!!

  19. Aletheia says:

    Wow. That’s unbelievable. Good on you for writing that letter out and letting us read. Empowerment, here she comes!! :-)

  20. Lisa Chin HHC says:

    Hi Meghan,
    I just wanted to say you are amazing! Your post yesterday actually prompted me to write a blog on your blog because you are a rock star! I’ve been a fan since you’ve basically started the blog. Thanks for spreading the word of natural health through your blog and your non-invasive approach. Please checkout your blog spotlight here:

    Have a great one and keep the inspiration coming!

  21. carrie @ says:

    I cannot agree with you more Meghan. While we occasionally still indulge in foods like turkey kielbasa (nitrate-free, organic, if we can find it) to see such horrible cheap (both health-wise & cost-wise) foods available at fundraisers is horrible. Just in the last month my husband and I participated in two fundraisers, one for cancer in general, and other for breast cancer. BOTH of these fundraisers sold deep-fried foods, foods made from all kinds of processed corn, wheat, “meat”, sugar, etc.. it completely blew our minds. As first time participants in these fundraisers, while we were expecting some “fair foods” we weren’t expecting to see the amount of foods on such a huge level. AND that people were buying them left & right. AT ONE booth for the general cancer fundraiser there was a church selling bananas, apples, and much healthier foods. ONE BOOTH… and we were the only people in line to buy from them. It is so sad that as a society we resort to selling the very foods that make us so sick in the first place to help raise money for cures. It simply makes NO sense. I’m so glad you posed this question and wrote to the CCFC. I think I need to do the same with the CCFA!

  22. Jayme says:

    This past spring I participated in a ‘Walk for Multiple Sclerosis’ near my hometown. I also was shocked and appalled to see that donuts and muffins from Tim Horton’s were being handed out at the end of the walk.

    I feel that large non-profit organizations like the MS Society of Canada should be spending the collected money, from friends and families of people suffering from MS, on education and prevention.

    I personally wrote to the contact I had from the MS Society and politely expressed my dismay at those kinds of snacks being given out. I also was wondering why local businesses in that community were not encouraged to donate. Kelowna BC is an abundant community for local food and generosity. Unfortunately, I heard nothing back!

    I would love some day to see a some sort of ‘regulating body’ that ensured that these ‘non-profit’ multi million dollar companies had to spend a vast and substantial amount of money, on prevention and education of diseases, rather than ‘cures’!!

    I ADORE your blog!


  23. Linda Keigher says:

    I read your letter with an open mind as I am person that lives with Crohn’s, Ankylosing Spondylitis, Uveitis, Asthma, Osteoprosis, Hiatus Hernia and a survivor of a Subdural Hematoma. I am a member with the CCFC. Your letter to me looks like you are looking for funds to run a study on diets for patients with CD and UC. You claim to have the cure. This cure is in foods that we eat.

    A bit of history on me. I am a person that can all the junk food that there is. Healthy nutritional food (which I love and would rather eat) do cause my gut and intestines great distress. We all are not the same. If we were then our genes would be different. What works for one doesn’t for another. I personally know of some people with IBD’s that can’t eat junk and only can have a good nutrious meal.

    To let you know that there is more than 30 genes that can cause a person to have Crohn’s. Which leads to the reason that we all are not the same. Which also means that one drug that works for some doesn’t for others. It is a trial and error. No one to this day has found a cure for all of these people. There are studies done world wide and they are crossed over with doctors in many countries.

    Our disease is not having epilepsy, cancer, HIV or asthma where they are able to isolate a drug that works for the majority of people. The reason for this is that for cancer or asthma the genes are identical with most people. This has made it easier to develope drugs that work. Even though they are able to produce medications for these disorders/diseases they still to this day have not found a totally 100% cure. Yes each of these has a place for those to donate to enable a cure also. So what makes it ok for these groups to continue fundraising and not for the CCFC.

    Do I beleive that will be a cure. YES I do. Do I believe that it has been found for all. NO I don’t. I have had all of my disease most of life. Asthma from birth and the other followed from the time I was 1 years of age. I am in my 50’s and spent the last 38 years battling Crohn’s and having to deal with the other from being 14 years of age forward. When I was first diagnosed the only medication that was available was prednisone. I have seen drugs come and go for Crohn’s. I have been in testing for the majority of them that are available. To no avail they haven’t worked to even put me into remission until the one that I am taking right now. A TNF (tumor necrosis factor) drug called Vedolizumab. So far it is working for me and I pray that it keeps working because it is the first drug that has given me some releif from my Crohn’s. I am not complaining just informing.

    You may have found that diet works for you. You also may find in time Mehgan that you may have to battle with your disease again. I would love to have look and try some of your recipes not to be healed from Crohn’s but maybe to enjoy the food.

    • Meghan Telpner says:

      I do not claim to have a magic bullet cure. I do have a solution that can help heal. And given the number of drugs that have come through the market that have not worked, yes, I do believe there should be some funding directed towards natural treatment options. Am I looking for the money to do that? Absolutely not. I am too busy working with people who have sought me out for help.

  24. cheryl says:

    O man, Thank you for this. I am also at the point where I cannot polietly bite my tongue any longer. It is absolutly ridiculas that these organizations don’t realize the difference between junk food and healthy foods. Doesn’t everyone have the internet?! Its not difficult to find this information online.
    this type of ignorance is everywhere, and the reality is that it is time to speak up. Its time to let them kindly know what’s up. Good on you for making them aware. Keep it going.
    I love your work! totally inspiring.

  25. Kristin says:

    A couple of years ago I was at a Rhode Island CCFA walk/fundraiser and they were serving Chinese food and white clam chowder… which is cream based. I ate a banana and was super frustrated, but when I contacted them afterwards to ask about the food choice, they said it was all donated.

    Still… really inconsiderate!

  26. sharon stanley says:

    well said. your points, your attitude and your knowledge is spot on. deep fried twinkies is just unreal. i always think it’s a hoot at our state fair, but at a crohn’s convention?! now that is crazy. thanks for giving me more to think about!

  27. Caroline Stahlschmidt says:

    Great letter, Megan! Good for you for taking the time to write it.


  28. Annick says:

    We seem to be a whole lotta people who believe in holistic healing and prevention of disease through nutrition etc. How else can we join forces to let the Crohn’s foundation know that they’re on the wrong track? How else can we tell them that they’re not helping and that if it continues, they will be shut down? Can they be shut down? Can government do anything about this?

    A lot of people can make a lot of noise…and change things. Maybe we should take some time and each write a letter to the foundation with our own story. That could be a start!

    Keep up your amazing work, Meghan, you are an inspiration.

  29. Dale says:

    I’m not sure when this post was originally posted, but looking at the comments, it seems to go back at least to 2010.

    Here we are in 2015 and not much has changed. I recently did the MS walk in Milwaukee, WI., which was organized by the National Multiple Sclerosis Society-Wisconsin Chapter.

    I was so taken back to find that they were giving away free milk and donuts at the event (of course these were corporate sponsored brands). Although they did offer fresh fruit, it was easy to observe that the majority of the people were much more drawn to the donuts.

    MS is an inflammatory disease. The simple fact is that diet is the single most important factor when it comes to anyone’s “self care”. Nutritionists all around the world recommend that people with MS stay away from dairy milk, saturated fats, trans fats, sugar, salt, refined grains and gluten.

    I would expect that the National Multiple Sclerosis Society to know better than to offer such foods.

    Thanks, Meghan for the post and all your efforts! Knowledge is power!

  30. Caitlin says:

    This letter is awesome and hits every mark! The fact that they still serve food and drink that are inflammatory to the gut and the body is mind blowing, and I think negligent. Years ago I volunteered there (I also have Crohn’s disease) and I had to leave because of the backward and inflexible nature of the organization. When I suggested we serve IBD friendly food at events the push back was enormous. Lets hope things start to change so that healthy eating and natural healing methods become the standard for those of us with IBD!

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